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World Down Syndrome Day

James health Book 789x1024 World Down Syndrome Day  Today, 21 March 2014, marks the 9th anniversary of United Nations official recognition of World Down Syndrome Day.

Each year the voice of people with Down’s syndrome and those who live and work with them join together to focus attention on what it means to have Down syndrome and how those with the condition play a vital role in communities across the world.

In the UK, the Down’s Syndrome Association (DSA) promotes and supports people with Down syndrome, their families, carers and interested professionals from the moment a  diagnosis is made and continues to do so throughout life.

Every year Down syndrome organisations across the world join together to focus on one aspect of living with Down syndrome and this year the focus is:

“Health and Wellbeing – Access and Equality for All”

DSA UK is one of the 50 countries featured in the official World Down Syndrome Day video designed to help create a single global voice advocating for the rights, inclusion and well-being of people with Down’s syndrome on 21 March.

“Let us in – I want access to Healthcare!”

The “Let us in! series of videos began in 2011 with “Will You Let us in?” and followed the theme of education in 2012 with “Let us In – I want to learn” and in 2013 “Let Us In – I want to Work!”.

The Down’s Syndrome Association annual awareness week campaign of Improving Health Care for Adults with Down’s syndrome incorporates the World Syndrome Day theme. The DSA has produced an easy read health book for adults with Down’s syndrome to take to their annual health check and to general appointments. The Health Book was launched at a parliamentary reception on Tuesday 18th March, Jeremy Hunt, Health Minister addressed the guests including interested members of both Houses of Parliament and officials from the Health Department.  During the reception guests heard from Professor Tony Holland from Cambridge University who explained the research behind the DSA’s Health Book, Sara Pickard who described how she managed her day to day health and Damon Hill OBE, patron for the Down’s Syndrome Association who talked about the importance of supporting health monitoring from a parent’s point of view.

Sara Pickard and Sheila Heslam from the Down’s Syndrome Association will present details of the Health Book to the World Down Syndrome Day Conference held at the United Nations Headquarters in New York on 21 March.

The “Dear Future Mom” video created by Saatchi & Saatchi Italy is a positive introduction to what it is like to live with Down’s syndrome in the 21st century.

Find out more about the work of the Down’s Syndrome Association.

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  • greggf

    “…. the work of the Down’s Syndrome Association.”

    A admirable cause.


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