Rett Syndrome
Life with Rett Syndrome: How other people view us
I was planning lessons for a year 7 class today, about short story writing and how to create a three dimensional character. One of the ways we learn about a character, I teach them, is through what other characters think, say and feel about them. It occurred to me that this is perhaps at odds with the rather modern concept that we should worry less about what others think and instead be brave and confident in ourselves.
By Beth Johnsson | Health, Notebook | Thursday, 18 April 2013 at 6:33 pm
Life with Rett Syndrome: I am still searching and I won’t stop
I rarely remember my dreams. I suspect this is because they are rarely unusual or noteworthy enough to hold on to, too often revolving around the pile of marking or the imminent Ofsted inspection to warrant using precious memory space!
By Beth Johnsson | Health, Notebook | Wednesday, 3 April 2013 at 3:39 pm
Life with Rett Syndrome: It is so much more than the facts, the stats and the science
I never expect anyone to know what Rett Syndrome is. In the three years since Hannah was diagnosed, only twice has someone responded with ‘ yes, I’ve heard of that’, and both times it was because they had seen a documentary about Coleen Rooney’s sister.
By Beth Johnsson | Health, Notebook | Monday, 25 March 2013 at 2:49 pm
Life with Rett Syndrome: There’s no such thing as ‘just a cold’
The name of your child’s school on the screen of your vibrating phone makes any parent nervous. It’s hard not to imagine the worst, even if only for a nano second.
By Beth Johnsson | Health, Notebook | Wednesday, 20 March 2013 at 3:17 pm
Life with Rett Syndrome: ‘When my little girl was diagnosed, I had no concept how much things were going to change’
I lost an old friend this week. Not in the idiomatic sense that he passed away, nor in the literal sense that I misplaced him in a crowded supermarket and never found my way back to him.
By Beth Johnsson | Health, Notebook | Friday, 15 March 2013 at 3:27 pm
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